Dad and I are about to head out to get my lab work. Fates willing, this will be routine enough soon that it loses its edge and weight. But like a lighthouse at night it draws my attention and brings a storm of questions. “If this then… if that then… scenarios ran through my mind each time my alarm told me to get up and pee. The transplant team were optimistic that things would be progressing well enough that I -should- be clear to go home to Tulsa today. But apparently my mind wanted to make sure I have a strategy on hand if I go back into the hospital or stay at my parents longer. This tendency of mine is no surprise to my coaching peers who know my CliftonStrengths assessment. It’s not even what I do it is who I am. The numerous wake up’s just gave time for it to flourish.
This soon to be lifted “keep the bladder light” schedule will soon be lifted but as I wrote the above, I can’t help but think of the parallels between this time of fractured sleep to when Bennett was a newborn with his cries replacing my alarm. And that is what this is… a birth. Anna’s choice has given me not a promise but a solid chance at a renewed life. I will not waste it.
At ten this morning Mom, Kenzie and I will head back for clinic where we will review my log, get a new med list (based off the morning labs), perhaps get my drain removed and find out if I am stable enough to move a turnpike drives distance from the hospital. It seems excessive to drive from Cashion to Baptist Integris twice but hanging out at the hospital where sick people go makes no sense nor am is going for breakfast or shopping wise yet especially when I have to measure my urine output every 20-40 minutes. So, we drive twice, plus Dad would rather drive early and be done for the day and Mom and Kenzie may be better recorders (and enforcers) of doctors’ orders.
If we get the expected news we will drive home in the morning. Dad and I will take the RV early with Mom, Kenzie and BenBug following in my truck a few hours later. I will hang out with Dad while he sets up. I have an HPI training call at 10 so will try and be home by then… they tend to go better in my office/sanctum.
Off to labs…
Anna Cannington has offered to be part of this program. As a kidney donor with a nephrologist brother (not to mention next level human) she will be able to provide unique insight into "other side" of the transplant process. It is particularly apt for her to join up as she is Dustin's Donor. To schedule a conversation with either of Anna or Dustin just connect with either of us!
Dustin was diagnosed with IgA nephropathy (Berger's Disease) in early 2007. He and his family know well the struggles that come with suffering kidney failure, dialysis and the transplant processes. Born from these fustrations and Dustin's love of strengths-based coaching (centered on what is best in people) comes the Kidney Koach program. This NO FEE program is for Renal patients, their families and nursing staff that want support, understanding and a little help on the path.