I can't wait to pee. I wake up in the morning and feel zero rush to go pee anymore. No one seems to talk about dialysis patients no longer needing to urinate. I am anomaly in that I still produce a bit, but that has diminished greatly the last few months. Since I still pee I get to be a pain to my med team. My dialysis lab days go longer so the “machines read right. It is either that or do 24-hour Urine collections (where you have to carry a little orange bucket around and store it in the fridge between uses). This also been the cause of a few unpleasant dialysis days and the reason I know my clinic “numbers” so well. The upside is that I was able my daily fluid restriction up from 24 to 36 ounces over time.
Why all this urination talk? (Anyone have to pee, yet?) Because peeing after a kidney transplant is one of the big benchmarks that things are moving well. We will all be waiting anxiously post-op for me to go pee. So next Monday afternoon that is the shape your good vibes will take. I picture everyone chanting PEE—PEE—PEE in unison.
I was warned that I would need to drink a gallon of water or more a day… ha! Anyone that knows me knows that I have always had a massive amount of water. Even as a kid wait-staff would just leave the pitcher at the table because they got tired of filling up my glass. As an aside, this was likely an early indicator of my Berger’s disease. I bought a 11/2 liter of Fiji water yesterday to have as soon as my fluid restriction is lifted. I will admit it was more than it should be to buy an overpriced bottle of water.
Anna Cannington has offered to be part of this program. As a kidney donor with a nephrologist brother (not to mention next level human) she will be able to provide unique insight into "other side" of the transplant process. It is particularly apt for her to join up as she is Dustin's Donor. To schedule a conversation with either of Anna or Dustin just connect with either of us!
Dustin was diagnosed with IgA nephropathy (Berger's Disease) in early 2007. He and his family know well the struggles that come with suffering kidney failure, dialysis and the transplant processes. Born from these fustrations and Dustin's love of strengths-based coaching (centered on what is best in people) comes the Kidney Koach program. This NO FEE program is for Renal patients, their families and nursing staff that want support, understanding and a little help on the path.