This entry could be delivered easily via Facebook posts as it is a bunch of update musings. I missed a day or two in these updates and feel it winding down. You can peruse the following in no particular order:
Three realizations have emerged due to my "no greater than a milk jug" lifting restriction 1- The modern age -needs- resistance training as an activity because it is really easy to navigate without going over that... maybe phones need to be heavier. 2- The box with my new Rx regimen is beyond my restriction. 3- Kicking laundry baskets and trashcans to where you want them is likely cheating.
I am cleared to walk outside the house now. So that is a start and my next best step. Lungs finally feel like they are opening up and I can laugh/cough/sneeze without bracing with a pillow and grimacing.
I feel great, foggy, but great. Fatigue finds me early still. Sleep is off due to the "keep bladder light" strategy.
This order is in place to keep undue strain as I still have a stint. This will be removed in an outpatient surgery within a few months/weeks? We are finding timelines are fluid, dynamic and unique to the practitioner in our new post-transplant world.
I have the honor [?] of being the first transplant patient that my Med team has asked to back off water. In fact, I am back under "restriction." 5 liters is now my max, considering while on dialysis it was 0.5 liters or so... this is doable ;)
Got a letter from Mayo that I am --off-- their List. Being fired has never felt so good. They also sent a bill.
We got home to find the house decorated by some dear friends with balloons, banners and notes everywhere. This was awesome, truly. We then wiped down and disinfected the whole house again.
I did have to keep the drain for another week as I am still producing too much... whatever it is that is draining. Gross? you should carry it around, measure and dump it. I'm grateful that I only have one as most have two and some three.
Anna and I have been interviewed by a couple of local (OKC) news stations. It went well enough. This is my fourth TV interview this year and I only watched the last one because Anna sent it to me via text. At least they got my name right. The first interview I did was about St. Francis closing their transplant operations (as they were going to selection for me) and they called me Robert. Our hope it that this will encourage someone else to save someone else.
I haven't stopped writing, but what is coming out is too raw, personal and exposed for public consumption. It feels good to both express it and have a -deep and radiant- space to do so. My kidney health had, by necessity, to be taken to public forum. What continues to surprise me is the love and support of that forum. Thank you, all.
Anna Cannington has offered to be part of this program. As a kidney donor with a nephrologist brother (not to mention next level human) she will be able to provide unique insight into "other side" of the transplant process. It is particularly apt for her to join up as she is Dustin's Donor. To schedule a conversation with either of Anna or Dustin just connect with either of us!
Dustin was diagnosed with IgA nephropathy (Berger's Disease) in early 2007. He and his family know well the struggles that come with suffering kidney failure, dialysis and the transplant processes. Born from these fustrations and Dustin's love of strengths-based coaching (centered on what is best in people) comes the Kidney Koach program. This NO FEE program is for Renal patients, their families and nursing staff that want support, understanding and a little help on the path.